Advice
How to offer help to someone with dementia who doesn’t want it
Do you know a person with dementia or memory problems who is refusing offers of help? Here are a few ways to support someone who may be in denial or lack insight about their situation.
It is common for someone living with dementia to not acknowledge that they are experiencing issues with their memory or other aspects of cognition, such as having difficulty holding conversations or carrying out daily living tasks.
This could be due to denial or lack of insight.
Denial is when a person doesn’t acknowledge certain facts or events, even when they may seem obvious to those around them. It is a psychological reaction that enables a person to cope with a difficult situation that may otherwise make them feel afraid, depressed, ashamed or worried.
Similar to denial, lack of insight is when a person with dementia is unable to recognise changes in their behaviour and emotions. This is caused by physical changes in the person’s brain.
When a person continues not to acknowledge the difficulties they are having, this can cause further problems later on. For example:
- they may refuse to accept help
- there could be delays in starting, stopping or continuing to take medication
- they may continue to drive despite it not being safe for them to do so.
Offering help to someone with memory problems who is experiencing denial or lack of insight
Someone living with memory issues may deny or not realise that they’re experiencing problems. This can be frustrating, especially if you’ve been encouraging them to visit their GP for a memory test.
A person who is in denial is likely to be feeling fearful and will need time to accept what is happening.
For some people, they may have some awareness of their cognitive issues and may be feeling uneasy or anxious about this. They may also be fearful about the future.
They may feel – or think that other people may feel – a stigma about having a diagnosis of dementia.
Here are some ideas to consider when talking to someone about your concerns.
- Broach the topic gently. It may help to remind them that memory issues don’t always point towards dementia.
- Be kind and supportive during the conversation. Listen to their reasons and any fears they raise.
- Let them know that you’re worried about them. Give examples of issues like missing appointments, misplacing items, forgetting names.
- Break down the larger issue into smaller ones. Pick one to focus on, such as, ‘I’ve noticed you’ve been forgetting names of friends. Maybe the GP will be able to help.’
- Keep a diary of events. This will help you show someone you’re worried about that you have ‘evidence’ for your worries. The diary will also support you both if you see a doctor as they may want to see a record of issues.
- Turn the focus towards getting support for their friends and family. For example, ‘If you visit the GP, we might be able to get extra help that would give me a break...’
Offering help to someone with a diagnosis of dementia who doesn't acknowledge it
Receiving a dementia diagnosis can be a daunting experience.
The person who has been diagnosed may feel a range of emotions, from sadness to disbelief to denial.
When you talk to someone about their diagnosis and how they’re feeling, try to stay calm. This may help calm them down, too.
Denial can be beneficial, as it can give someone time to process news and how they feel about it.
Giving the person time and space to think about their diagnosis and how they feel about it is a good way of approaching the situation.
If they continue to not acknowledge their diagnosis, you might start to feel frustrated or unable to help.
There are a few things you can do to support someone who is in denial about their dementia diagnosis or refusing to accept help.
- Think about ways to support them without giving dementia as the reason. For example, introduce new technology or memory aids by letting them know how they can help with daily tasks.
- Find out more about local support groups and therapies. Attending these may help the person come to terms with their diagnosis. Talking and art therapies are popular choices.
- Try to think about what might motivate the person to accept help. Think about other times where you needed to persuade them of something, and try to adapt what worked then to this situation.
- Try to stay calm when talking about your concerns. Getting angry or upset can make conversations uncomfortable for everyone involved. The person you’re worried about may be more hesitant to talk to you in the future.
It's important to try talking to the person you're worried about and to encourage them to see a doctor themselves.
Where this doesn’t work, you might consider speaking to the person’s doctor yourself. If doing so, it is best to get the person’s consent, or at least inform them that you are going to speak to their doctor. It will then be for the doctor to decide whether they disclose the information to the person.
Tips for supporting someone with memory loss
Get practical tips and advice on how you can support someone who is experiencing memory loss
If you have a question about dementia, call our helpline to speak with our expert advisers, or join Dementia Talking Point to chat with other people in your situation.
Jen
saysAnonymous
saysJen, we're really sorry to hear about your mum - it sounds like a very difficult situation to be in. Please know that you aren't alone and we are here for you.
We'd recommend calling our support line on 0333 150 3456 to talk about this with one of our trained dementia advisers. They will listen to you and provide advice and support. You can find more details about the support line (including opening hours and other methods of contact) here: https://www.alzheimers.org.uk/dementia-connect-support-line
You may also find it helpful to join our online community, Talking Point. Here, carers and other people affected by dementia share their experiences and offer advice to others going through similar situations. You can browse topics within the community or sign up to join the conversation: https://forum.alzheimers.org.uk It’s open day or night and free to use.
We hope this helps for now, Jen. Please do call our support line if you need to.
Nehal Desai
saysAnonymous
saysThanks for your comment, Nehal. This sounds like a really difficult situation for you and your family.
We'd recommend calling our support line on 0333 150 3456. You can speak to one of our trained dementia advisers who provide information, advice and support relevant to your situation. More details about the support line (including opening hours) and other support services are available here: https://www.alzheimers.org.uk/dementia-connect-support-line.
You may also find it helpful to read our information on dementia and changes in a person's behaviour: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/symptoms/behaviour-changes.
It might also be useful to have a look at our carers guide. You can download a copy as a pdf or order a physical copy for free: https://www.alzheimers.org.uk/get-support/publications-factsheets/caring-person-dementia-practical-guide.
We hope this helps.
Alzheimer's Society blog team
Doug
saysLynn
saysAnonymous
saysLynn, we're very sorry to hear about your father - it sounds like such a difficult situation to be in. Please know that you aren't alone and we are here for you.
We'd strongly recommend calling our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They will listen to you and provide specific advice and support to help you. You can find more details about the support line (including opening hours and other methods of contact) here: https://www.alzheimers.org.uk/dementia-connect-support-line
We hope this helps for now, Lynn. Please do call our support line.
Alzheimer's Society blog team
Mark
saysAnonymous
saysHi Mark,
We're really sorry to hear about your dad, it sounds like you and your family are going through a difficult time.
Please know that you can call our Dementia Connect support line on 0333 150 3456. One of our trained dementia advisers can listen to you and can offer advice, support and information specific to your dad's situation. More details about the support line (including opening hours) are available here: https://www.alzheimers.org.uk/dementia-connect-support-line.
We hope this helps.
Gillian
saysHi Gillian,
I'm sorry to hear about your concerns for your mother,
We have some advice on talking to someone about their memory problems that you might find useful: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/tal…
If you are based in the UK you can call our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They can listen to your situation and provide specific information and advice.
I hope this is helpful
Alzheimer's Society blog team
Sherida
saysHello Sherida, thank you for sharing your experience, I'm sorry to hear about your Mum's diagnosis.
If you are based in the UK, we'd recommend speaking with one of our dementia advisers. They will listen to your situation and provide you with advice and support.
You can call our support line on 0333 150 3456.
You might also benefit from joining our online community. Talking Point is the ideal place for carers and other people affected by dementia to share their personal experiences, and offer advice and support to others going through similar situations. You can browse the conversations within the community or sign up for free: https://forum.alzheimers.org.uk
Alzheimer's Society website team
Miss J
saysHi, my father has been experiencing memory loss for a few years and this is getting progressively worse. He refuses to go to the doctors as he says it's just old age; we've been trying for years. GP will not get involved as he is in denial and in the meantime his symptons (or what I think are symptons) are worsening; aggression, mood swings, inability to remember simple words in a sentence - like food or shower and will sit for hours staring at a turned off tv or his hands, cannot deal with ay unexpected change where the response is not what he thought (gets aggressive with this. Any help and advice would be gratefully received!
Anonymous
saysHi there,
We're sorry to hear about your father, it sounds like you're going through a difficult time.
We have some advice on talking to someone about their memory problems that you might find useful: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/tal…
Alternatively, you might benefit from joining our online community, Talking Point. Here, you can get advice and support from people affected by dementia who have often been through similar situations. You can browse the conversations within the community or sign up for free: https://forum.alzheimers.org.uk
Also, please know that you can always call our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They can listen to your situation and provide specific information and advice. You can find more details about the support line (including opening hours) here: https://www.alzheimers.org.uk/dementia-connect-support-line
We hope this helps for now - and remember to call the support line on 0333 150 3456 if you need someone to talk to.
Alzheimer's Society blog team
Joyce Lindsay
saysMy husband of 55 years will not accept that anything is wrong and we are 5 years on the journey an advert came on television a person who had Alzheimer’s my husband said it must be awful for people who have it. He would not go to the doctors I went to see our doctor and he made an appointment for my husband telling him he needed a scan as he was having headaches which he had. The result he had Alzheimer’s he said to the doctor you are talking rubbish I am perfectly ok.He is still saying he’s ok but does not know where to find a cup in the kitchen and other things I have not asked for any help as he would say he’s ok .I really understand your situation but when they are in denial it is so hard to move forward I do hope you can very soon
Anonymous
saysThanks for your comment, Joyce. This sounds like a really difficult situation.
We'd recommend calling our support line on 0333 150 3456. You can speak to one of our trained dementia advisers who provide information, advice and support relevant to you. More details about the support line (including opening hours) and other support services are available here: https://www.alzheimers.org.uk/dementia-connect-support-line
You may also benefit from joining our online community, Talking Point. Here, carers and other people affected by dementia share their experiences, and offer advice and support to those in similar situations. You can browse the conversations within the community or sign up for free: https://forum.alzheimers.org.uk
We hope this helps for now, Joyce. Please do call our support line if you need to.
Alzheimer's Society blog team
M. Dulohery
saysAnonymous
saysHi there,
We're very sorry to hear about your father, it sounds like you and your family are going through a difficult time.
We'd recommend calling our support line on 0333 150 3456 to speak with one of our trained dementia advisers. They will listen to you and provide specific information, advice and support that's relevant to your family's situation. You can find more details about the support line (including opening hours) here: https://www.alzheimers.org.uk/dementia-connect-support-line
We hope this helps for now.
Alzheimer's Society blog team
Dawn
saysVery healthy active father-in-law with early dementia, but lacks insight into his condition he will not seek out food if hungry and will wear the same clothes to bed and not bath or change even though perfectly abled bodied, even if you leave prepared food or bath water.
Other than this you would never know he had dementia, just by talking to him, he is a pleasant fellow otherwise.
Any ideas ?
Anonymous
saysHi Dawn,
Thanks for your comment, and sorry to hear about your father in law.
We have some pages on our website about denial and lack of insight that you may find helpful: https://www.alzheimers.org.uk/get-support/help-dementia-care/understand…
We also have information on some of the other things you've mentioned such as eating and drinking, getting dressed and washing and bathing. If you've not seen it already, you might want to have a look at our full list of publications which are listed here and free to order: https://www.alzheimers.org.uk/get-support/publications-factsheets/full-…
If you'd prefer to talk to someone about your father-in-law, you can also call our Dementia Connect support line 0333 150 3456. One of our dementia advisers will listen to you and learn more about your situation, then give tailored information, advice and support. You can find out more about the support line (including opening hours) here: https://www.alzheimers.org.uk/dementia-connect-support-line
I hope this is helpful, Dawn.
Alzheimer's Society web team
Lynn Lockridge
saysI recently began caregiving a lady with Alzheimer's dementia. Daily she says she doesn't know me, cries and demands I get out of her house. The family hired me to stay with her to give her husband a break and just to help. Any suggestions on how I should respond to her? Thank you.
Ginger Griffey
saysMy mother in law has health problems and early dementia. She is staying with us right now and I have been helping her. She came here after a recent hospital stay that seemed to speed up the dementia symptoms we had been starting to see. She repeats herself, doesn't always remember to eat or change her clothes, and gets confused. She does remember some things but very sporadic and repeats herself all the time and doesn't know it. However she is insisting she wants to go home. Neurologist has said she should stay where she is until she has some tests and sees them again. But she is adamant she is going home. We have power of attorney but not guardianship. It would be unsafe for her to go home, but she can be nasty and stubborn (worse now with dementia). She believes she will get better and no matter what we tell her she believes dementia is associated with falling and she hasn't had any more "episodes.". We are at a loss and no idea what to do. We know if she goes home to her condo it will result in her probably going back to the hospital. We have suggested assisted living which would be best for her but she wants nothing to do with that. She doesn't care what her doctors say, she wants to go home and she is 75 and should be allowed to do so. Any advice on what we should do?? This is so stressful.
Anonymous
saysHi Ginger,
We're sorry to hear this - it sounds like a really difficult time for you and your family.
If you are based in the UK, we recommend speaking with one of our dementia advisers to discuss the situation. They will be best placed to provide you with advice and support. Please call our Dementia Connect support line on 0333 150 3456. (More information on opening times: https://www.alzheimers.org.uk/get-support/dementia-connect-support-line)
If you're based in the US, please contact the Alzheimer's Association helpline: https://alz.org/help-support/resources/helpline
Or if you're based in Canada, please contact the Alzheimer's Society of Canada helpline: https://alzheimer.ca/en/Home/ContactUs
Wishing you all the best,
Alzheimer's Society blog team
Nyla Lewis
saysJust had a conversation with my husband about dinner. He said it needed soy sauce. I asked him if he had gotten the soy sauce out. He said no soy I went to get it out of the cabinet. It was not their. I asked again about the soy sauce and he denied that I asked him that., instead insisted that I asked about bowls. My teenage son was standing next to him and heard the whole conversation. Then my husband accused me of using word games to confuse him. I have been in the care giving business for most of my life I don’t play games like that. He has taken me off the list to speak to his doctors. His reason is because I lie about him, I am mean and hateful. I won’t even list the awful things he says to me. With out his convent I can not do anything but my son and I can’t take much more of this. I am going to start recording every conversation maybe I will get someone to believe me and I can get the help he needs.
Rachel
saysI am so sorry that you are struggling like this. Please do remember that even if your husband has removed the authorisation for you to speak to his Dr about him, that only covers what the Dr can tell you. It doesn’t cover what you can tell the Dr. So you could write to the Dr giving your concerns with examples of unusual behaviour. You should also make an appointment with your Dr to discuss how you are feeling - rundown, tired, unable to cope with the changes etc, as this will also help. They can then speak to him when he next goes in (they can call him for a check up) to see whether or not he needs to have an assessment.
Please also remember that whilst your husband may be being nasty to you it is not necessarily his intention to be. It’s a fairly normal behaviour for someone whose mind is changing and it could either be that that part has changed or that they truly do not remember things which happen, or that they are so frightened about those changes they deny things. You may feel alone but I promise you are not. This is a common part of the dementia process and you need support from others around you and the medical profession for a diagnosis.
It’s not an easy journey and I wish you well in your next steps and beyond. One thing at a time though.,
Shawna
saysI'm happy that this exist for people that is struggling for families or our love ones who are going through this! My husband has been diagnosis with early stages of dementia, after the doctor told us, he never brought it up again until the doctor called to schedule another nuro appointment. Then my husband said to me; that he don't want to go to that appointment or take medication of any kind for his brain. All I can do is being here for my husband throughout the process an also mention to what he said with his healthcare Provider.
Julie Heath
saysMy mum was diagnosed with vascular dementia almost 2 years ago. She has never believed in taking medication., she thinks that taking coconut oil , krill oil and drinking water are going to help her. She is in denial. Says she is taking her medication but 90% of the time is throwing it away. She is very aggressive and controlling and she sees a member of her family every day for several hours at a time but it is never enough.
Don’t know what way to turn now. If we suggest anything… I’m not ready for that. Or I’m not old, don’t put me in that category
Sue Reed
saysMy mother in law refuses all and any help. She is verbally aggressive and gets very angry. She lies to all her children and her forgetfulness is very bad so know one knows the truth or what is going on with her. She refused to wear her personal alarm and never leaves the house. We are all at our wits end and not sure what to do.
Anonymous
saysHello Sue,
We're sorry to hear your mother-in-law is refusing help and behaving aggressively.
We have some information on our website about aggressive behaviour that you may find helpful: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/sym…
You can also talk to one of our dementia advisers if you need support. Please call our Dementia Connect support line on 0333 150 3456. Some more details about the support line (including opening hours) here: https://www.alzheimers.org.uk/dementia-connect-support-line
We hope this helps, Sue.
Alzheimer's Society website team
Veronica Hurford
saysMy father has been living with us for over six years now, because he had been leaving the gas on (lit and unlit) so we decided it may be time to have him with us. He continued to do this even in his new home and with the change to electric hob the danger was no longer there, even though it was a fight, he does not like change as do any older people.
He praises the new hob, especially because of the safety measures it provides, such as turning itself off. My husband and I want him to remain independent with daily tasks as making breakfast but this was a challenge because he had the mental disposition that he was owed the service and sat waiting for it all to be done for him, eventually after much diplomacy he gave in with much huffing and defiance to making his own breakfast.
We have now after 6 years had many personality issues with him, myself and my husband are mild tempered and struggle with confrontation, but without fail we have had to deal with the atmosphere of a dominant Man, proud and despises any criticism, denial of anything, from dirty shoes, poo on everything to erratic driving. He has a very clever answer to everything, how can I win? I don't argue I reason.
But how do you reason with an unreasonable person....
He is confused about many things, but if it interests him he focuses.
I've left many areas of concern out, including hygiene, driving issues such as righting of a car, incurring speed ticket, being reminded and stopped by police for not wearing a seat belt, not locking front door and even leaving the keys in the front door, sometimes the door left open., leaving taps running... The list goes on.
My main worry is what do I do when he won't comply and thinks he is fine, he even tells friends all his woes but obviously one sided. I would never say to his friends how he is because he has his dignity... I do not want to take this away or build any barriers. He does not want further tests for dementia and he insists on continuing to drive, assuring me he is driving better than ever.
Is anyone else experiencing this, are you living with your parent/parents with this problem.
I really don't know how to tell someone with efficiency who has short term memory loss, without causing more anxiety.
Anonymous
saysHi Veronica - thanks for getting in touch.
It sounds like you'd benefit from speaking with others who have been or are currently in similar situations. Within our online community, Talking Point, carers and other people affected by dementia share experiences, advice and offer support. You can browse the community without registering, or sign up to become a member: https://forum.alzheimers.org.uk/
It's free to use, and open day or night.
In the meantime, we have some information on practical tips for supporting someone with memory loss, which you may find helpful: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/sym…
We also have guidance on making decisions and managing difficult situations, including around driving: https://www.alzheimers.org.uk/get-support/daily-living/making-decisions…
These pages offer general advice, but you can also speak with a dementia adviser about your father's situation by calling our Dementia Connect support line on 0333 150 3456. Find more details about the support line, including opening hours, here: https://www.alzheimers.org.uk/dementia-connect-support-line
We hope this is helpful, Veronica.
Alzheimer's Society blog team
Jo wollington
saysI really empathise with your situation. I'm currently living with my mum, who refuses point blank to accept that something has changed. I hear her talk to her dead dog about how confused she is, and she's not sure what is going on. But, if I dare say anything she becomes aggressive and hostile. I am here to help but she is constantly rejecting any attempt to assist her. She can't really cook anymore but insists on doing it, along with everything else. We have never talked in our family. My brother is in London and my sister has opened her dream flower shop. I'm happy for them but I do everything, including the stress of seeing mum change. I don't know how much more I can take. I love her and want to help but she has destroyed my friendships, relationships and takes away all my independence. The house next door is available to rent, and I think it would be a sensible move. It would give me space, but I'd be here to help. She has actually forbidden this..... I'm 52! I don't think she wants me to have a separate life and my siblings are happy to get on with their lives and leave me with the stress. I am at my wits end. I just want her to have a diagnosis so we can move forward. However, her best friend died from dementia and she used to be a nurse, so I can't believe she doesn't know but assume that it's fear that guides her. I don't know what to do. I've done everything suggested.
Karen McQuillan
saysHi I am the carer for my husband - he has just had the diagnosis of Alzheimer’s 6weeks ago- we have been chasing this for over 2 years - we thought it would be vascular dementia because if his issues from diabetes but it’s not and is Alzheimer’s
My question is please - he has reached the stage where he doesn’t go out, can’t do the simplest of tasks, forgets to wash. Personal hygiene etc - but is refusing any help - giving excuses , plausible answers and saying I am constantly criticising him - I try desperately hard to keep a happy tone of voice but my daughter is saying I am critical -
The only food he makes himself is croissants - looses track of time
How can I encourage him to accept help more graciously ? And us not get into a fight (disagreement) all the time ?
Many thanks fir all help x