Dementia Support Line
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My mother has had terrible memory problems for three years before she was diagnosed with Alzheimers related Dementia in October 2023. My husband and I have been...
Please read, this is exactly what happened with Bud....
My name is Heather and I have organised a charity...
My mother has had terrible memory problems for three years before she was diagnosed with Alzheimers related Dementia in October 2023. My husband and I have been looking after her financial situation for this whole period. If she had had been diagnosed earlier I believe she would have been better off. I took her to doctors for three years regarding memory loss and impairment of processing information but to no avail.
Mary
Please read, this is exactly what happened with Bud. Nobody would diagnose him with dementia, even neurologist and PCP wouldn’t even remove his driving license.
But when he was in Ponca Rehab they saw his behaviour, movement and agitation and started him on dementia meds. However still no diagnosis.
Looking back, no wonder he was falling all the time, and slow stiff movements.(Parkinson’s)
It took him being inpatient for nearly a month in November in Integris Health Ponca Hospital and then a week in Hillcrest Hospital for the Doctors to diagnose with Lewy Body Dementia.
So my daughter and I have been through hell but PCP did not give a fig. I was so concerned near the end that he would assault and hurt us when he is agitated. The home health nurse had also voiced her concerns about this to PCP.
Fortunately I loved Bud so much and he was well taken care of at home but it was a lot.
But when he was in Ponca Rehab they saw his behaviour, movement and agitation and started him on dementia meds. However still no diagnosis.
Looking back, no wonder he was falling all the time, and slow stiff movements.(Parkinson’s)
It took him being inpatient for nearly a month in November in Integris Health Ponca Hospital and then a week in Hillcrest Hospital for the Doctors to diagnose with Lewy Body Dementia.
So my daughter and I have been through hell but PCP did not give a fig. I was so concerned near the end that he would assault and hurt us when he is agitated. The home health nurse had also voiced her concerns about this to PCP.
Fortunately I loved Bud so much and he was well taken care of at home but it was a lot.
Denise
My name is Heather and I have organised a charity event in my garden for a few years always for a different charity. This year I decided to donate to the Alzheimer’s Society as it’s one of the charities that honestly does worry me.
My friends always help me on the day to make sure the event is a success for which I am extremely grateful. This year we have raised £1,500 for the Alzheimer’s Society with a cream tea in my garden to which we had nearly 100 people attend . I hope the money raised will help the charity.
My friends always help me on the day to make sure the event is a success for which I am extremely grateful. This year we have raised £1,500 for the Alzheimer’s Society with a cream tea in my garden to which we had nearly 100 people attend . I hope the money raised will help the charity.
Heather
Share your story
Help bring dementia out from behind closed doors and tell us, what is your reality of dementia?