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My mum was diagnosed with Alzheimer’s at the age of 62. She was a talented hair dressers and spent hours / days talking to people. Covid hit and she had to stop working. After coming out of the first lockdown I was helping her get her diary organised to start back to work again and I noticed she was struggling to understand days and dates. We went to the doctors and after a few tests and in 2021 mum was diagnosed. I definitely think being in lockdown with hardly any contact with people the Alzheimer’s came out in her.
Mum no longer works and I look after her full time. People ask how she is , I tell them mums well but it’s hard.
Anyone caring for someone needs help.
Of all the strange things she does she still has her sense of humour and can be very funny. She loves music and any excuse to dance. She still goes to Salou soul weekend every September with the help of mums friend.
Just because she has Alzheimer’s she still has to do the things she’s loves.
Mums best friend was also diagnosed with Alzheimer’s last year and this is becoming more familiar everyday.

More knowledge of the disease needs to be taught. All the factors of life that can contribute included.

We need to find a cure before things get really bad.
More specialist hospitals are needed
More help for carers especially financial help

I will be by mums side till the end ❤️

It's a lonely road - the road of partners, family and carers. When your smart, funny, intelligent husband begins to disappear at the age of 62, it's terrifying. Young Onset Alzheimer's seems to be quite unusual and it's very hard to find appropriate support options for Martin. The options just don't fit with his symptoms or age group. He is still physically fit and mobile - but mentally that's a whole different picture. Almost 2 years on from diagnosis, Martin is unrecognisable. His executive skills have all but disappeared, his personality is muted and he struggles now to find the words to express himself. He relies on me totally and yet he thinks he's ok. I fill our life with activities, trips, friends and family in a bid to keep him entertained. If there was a choice to run and not come back, I'd be gone, but I could never do that. So we continue our existence and thank God for our wonderful friends and family. I would be in a dark and sad place without them. They make me laugh, allow me to have an afternoon or evening to myself or just simply treat us like the happy, fun couple we used to be. It's not just the sufferer who is affected, it is everyone who loves them. It's hard not to feel bitter, but what would be the point, you just have to hold your head up and focus on getting through each day, one day at a time.

I knew there was something wrong with my amazing dad, he had been a maths lecturer before retiring and loved spending time with his grandchildren. He forgot all his PIN numbers for his bank cards which was not like him, he also left his granddaughter at school, after forgetting to pick her up.
He was diagnosed with Altzimers in January 2019 and he died in December 2021. These 2 years we spent as a family fighting for everything, there was no help from higher up organisations as they don’t see it as important, we were refused a blue badge as we were told it’s Altzimers it didn’t justify a blue badge,Why ??? But in the process of trying to get help you are watching that person you love, who has brought you into the world slowly dying infront of you. I received a lot of help from the Altzimers society of which I thank you.

My late Mum was diagnosed with vascular/Alzheimers. My mum’s dementia deteriorated quickly in Covid. Care she was receiving from out in community care was no good. My mum was neglected. My mum was bed bound unable to do things for herself. I had I fight to get her into a nursing home that suited her needs. Social services was not easy to talk to. It was also a big impact on myself and family well being. Each person and family needs the right help and support who’s loved suffers with this cruel disease that’s the biggest killer. Price of nursing care homes is absolutely ridiculous. I feel if you only come from middle class family they do not the right to the have best care as people who have money. It’s all about equality isn’t it? This needs sorting out! My mum had bedsores from where she had carers go into her flat that eventually went right down to her nerves on bottom where she was getting rotated and wasn’t prompting her medication as it was discussed because she wasn’t sound of mind to remember to take her medication. The fight to get her to a care home was appalling. A social work assistant done an assessment said she was to go home and what right did I have to say she was to go into nursing home. As apparently my mum had capacity. I thought only a social worker could do an assessment not a social work assistant. Has I was my mums support and carer of family I went through hell. I don’t want his to happen to another family suffering to be heard and get the support the person suffering with dementia as well as a good support for family going through it and to understand it.. I did manage to get my belated mum into a lovely nursing home by me where I had to find extra top up £98 a week. Of o couldn’t fund it they were going to put my mum in another care home quite far from me. Visiting would of been 11 am -4pm week days not weekends. Where I work and my mother would not get a visit from her grandchildren. Unfortunately my mum passed November 2023. I feel if I could of got her into nursing home earlier maybe she would of been a lot more stronger with the right support.