Published research supporting use of tools and methods in this resource
A list of studies which may be of interest for further reading.
- Dementia experience toolkit - useful links and further reading
- You are here: Published research supporting use of tools and methods in this resource
Commissioners, regulators and providers who informed the creation of this resource, asked for the methods featured to be evidence-based. The following published studies may be of interest.
1-2-1 Conversations and Interviews
Experiences and expectations of living with dementia: a qualitative study (2016)
How can we get access to the experiences of people with dementia? Suggestions and reflections (2006)
Co-Production and working together with people affected by dementia
Consent
Participatory research: A method for process consent with persons who have dementia (2007)
Content analysis
Diverse Communities
End of Life
Measuring Quality of Life
Observational Methods
Proxies
Ethical and methodological issues in interviewing persons with dementia (2007)
Proxy rated quality of life of care home residents with dementia: a systematic review (2016)
Qualitative Research Methods
Evidence-Based Interventions to Improve Quality of Life for Individuals with Dementia (2007).
More than talking: a scoping review of innovative approaches to qualitative research involving people with dementia (2018) - concluded that qualitative methods can be used to support the inclusion of people with dementia in research, particularly where adaptations are made to make approaches dementia-friendly.
Working with carers
University College London MARQUE study