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It took my family 2 years to fight for a 2nd round of dementia tests which proved what we all knew - my mother had Alzheimer’s dementia. In those 2 years of fighting my mother’s brain had shown visible shrinkage. This proved that the original basic test was quite frankly laughable and unfit for purpose. I believe initial tests are deliberately made this way to ensure diagnosis is avoided for as long as possible thus relieving the NHS from its burden of duty of care for as long as possible. We must use Japan as a best practice template if we are to give people their legal and human rights to care and support. At present as for many years, our dementia care system from start to finish is broken. Don’t get me started on dementia palliative care.

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