Thanks for this voice of compassion. We remain in fairly early stage PCA - a very rare dementia, and home is fine and I am determined it always will be. What do I know though? I have studied PCA as best I can but my brain still shies away from what the end state will be. I have read of remarkable effects given strong life style changes involving food and exercise but if these do work (studies are optimistic) one needs 100% cooperation/buy in from the dementia patient themselves and - it would seem - support from health and exercise coaches which are expensive. I would feel so much better if I knew that work was being done in this country on this and that help was being rolled out. As it is I look at the price of care homes, and wonder if we could both go into one if the time comes that I really cant cope at home - as I don't think I could afford to pay for one and still live outside myself. I guess this is a huge and super widespread issue.
Dementia Support Line
Anne Carroll Marshall
saysThanks for this voice of compassion. We remain in fairly early stage PCA - a very rare dementia, and home is fine and I am determined it always will be. What do I know though? I have studied PCA as best I can but my brain still shies away from what the end state will be. I have read of remarkable effects given strong life style changes involving food and exercise but if these do work (studies are optimistic) one needs 100% cooperation/buy in from the dementia patient themselves and - it would seem - support from health and exercise coaches which are expensive. I would feel so much better if I knew that work was being done in this country on this and that help was being rolled out. As it is I look at the price of care homes, and wonder if we could both go into one if the time comes that I really cant cope at home - as I don't think I could afford to pay for one and still live outside myself. I guess this is a huge and super widespread issue.