My husband has been ill for 30 years. He had Aplastic Anaemia at 27 and was successfully treated by a wonderful NHS Haematologist. He’s had a brain haemorrhage, has Epilepsy and was diagnosed 22 years ago with Multiple Sclerosis. He went into a coma whilst in hospital and has also had a suspected mini-stroke. Three years ago we were told he had MS Dementia, although I reckon he’s had this since 2012. He has an indwelling catheter and is disabled. He uses a Zimmer frame with great difficulty in the house and I push him in a manual wheelchair outdoors. However, I am having to limit the wheelchair pushing due to osteoarthritis, carpal tunnel syndrome and Cervical Spondylosis, which I think has been caused with 24/7 caring, as I have to do everything for him. I arranged four hours respite a week and he enjoys the music therapy and chatting with others. He is asking me the same questions over and over again and has frequent bowel accidents. He has Optic Neuritis and Nystagmus too. I do my best, but it is very lonely.
Dementia Support Line
S.
saysMy husband has been ill for 30 years. He had Aplastic Anaemia at 27 and was successfully treated by a wonderful NHS Haematologist. He’s had a brain haemorrhage, has Epilepsy and was diagnosed 22 years ago with Multiple Sclerosis. He went into a coma whilst in hospital and has also had a suspected mini-stroke. Three years ago we were told he had MS Dementia, although I reckon he’s had this since 2012. He has an indwelling catheter and is disabled. He uses a Zimmer frame with great difficulty in the house and I push him in a manual wheelchair outdoors. However, I am having to limit the wheelchair pushing due to osteoarthritis, carpal tunnel syndrome and Cervical Spondylosis, which I think has been caused with 24/7 caring, as I have to do everything for him. I arranged four hours respite a week and he enjoys the music therapy and chatting with others. He is asking me the same questions over and over again and has frequent bowel accidents. He has Optic Neuritis and Nystagmus too. I do my best, but it is very lonely.