My husband was taken into hospital two weeks ago after suffering a fall whilst he was in respite and it has been a total nightmare as to put it bluntly different doctors have seen him all basically claiming they know and are treating him for an infection which has caused delirium it is a long saga but tiring and mentally draining for me as his full time carer I am allowed to visit on a carers passport but to be totally honest do not feel listened to baring in mind I have cared for him for the past 6 year since he was diagnosed and have seen him with UTI infections before all same symptoms as he has now but they keep insisting it was a chest infection they have treat him with antibiotics and after the 2nd UTI developed they have put him on stronger antibiotics and he is showing good signs now of becoming coherent/eating more and wanting to get out of bed to move around so I am keeping my fingers crossed and praying these are all good signs however I will add the fact that it does need to change as far as hospitals and doctors are concerned about just presuming they know and doing what they like without including the carer whom may actually know a lot more I had it said to me by a doctor yesterday that it is the decline in his Lewy Body and had I prepared myself for this I advised him I had been preparing since he was diagnosed in 2016 so felt this was quite condescending of this particular doctor as I know in my heart of hearts it is not a decline it actually has to do with him having this UTI and developing delirium.
Dementia Support Line
Susan Whitehead
saysMy husband was taken into hospital two weeks ago after suffering a fall whilst he was in respite and it has been a total nightmare as to put it bluntly different doctors have seen him all basically claiming they know and are treating him for an infection which has caused delirium it is a long saga but tiring and mentally draining for me as his full time carer I am allowed to visit on a carers passport but to be totally honest do not feel listened to baring in mind I have cared for him for the past 6 year since he was diagnosed and have seen him with UTI infections before all same symptoms as he has now but they keep insisting it was a chest infection they have treat him with antibiotics and after the 2nd UTI developed they have put him on stronger antibiotics and he is showing good signs now of becoming coherent/eating more and wanting to get out of bed to move around so I am keeping my fingers crossed and praying these are all good signs however I will add the fact that it does need to change as far as hospitals and doctors are concerned about just presuming they know and doing what they like without including the carer whom may actually know a lot more I had it said to me by a doctor yesterday that it is the decline in his Lewy Body and had I prepared myself for this I advised him I had been preparing since he was diagnosed in 2016 so felt this was quite condescending of this particular doctor as I know in my heart of hearts it is not a decline it actually has to do with him having this UTI and developing delirium.