Celebration of involvement

We are celebrating people with lived experience of dementia who are at the heart of everything we do at Alzheimer’s Society.

It’s these heroes who help plan, shape and influence the work we do by sharing their knowledge and skills, their experiences and stories, their opinions and ideas.

This month we come together in a month-long Celebration of Involvement, and we encourage everyone to join in. 

At Alzheimer’s Society we know that to continue to be the trusted experts who provide help and hope to everyone living with dementia, it’s crucial that people with lived experience of dementia are involved in every aspect of the work we do at the Society. 

How people with lived experience of dementia make a difference

What does involvement look like?

Informing

Sharing stories, information or awareness raising activity.

Engaging

Ongoing conversations to help understand issues and enable people with lived experience of dementia to express views and discuss ideas for change.

Consulting

Seeking a wide range of opinions to influence our decisions and plans. 

Co-creation

Designing with people with lived experience of dementia, sharing ideas together and incorporating these into the outcome.

Co-production

An equal partnership where people with lived and learned experience work together from start to finish.

What has involvement already achieved?

Below are some examples of how people’s lived experience of dementia has influenced both services and initiatives. 

• Essex peer support service
• Dementia friendly sports clubs and venues
• Wakefield services review