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Real stories 'Dad's hallucinations got worse and worse' - Jess and her dad's young-onset dementia diagnosis Jess and her brothers began to notice worrying changes in their dad's behaviour, such as hallucinations, while he was living alone. Following a diagnosis of Alzheimer's disease, the siblings set out looking for the right care home for their father. Jess and her brothers began to notice worrying changes in their dad's behaviour, such as hallucinations, while he was living alone. Following a diagnosis of Alzheimer's disease, the siblings set out looking for the right care home for their father. ... 28 January 2021 23comments.
Information Book group: Slow puncture by Peter Berry and Deb Bunt We hear about an account of a year in the life of a keen cyclist diagnosed with young-onset dementia. We hear about an account of a year in the life of a keen cyclist diagnosed with young-onset dementia. ... 01 December 2020
Real stories Peter's dementia poem for his wife, Joyce - 'A Changing Life' Peter has been looking after his wife, Joyce, for over 12 years. She was diagnosed with Alzheimer’s disease at the age of 58. Peter finds comfort in writing poetry, and hopes others will benefit from reading his poem about dementia. Peter has been looking after his wife, Joyce, for over 12 years. She was diagnosed with Alzheimer’s disease at the age of 58. Peter finds comfort in writing poetry, and hopes others will benefit from reading his poem about dementia. ... 19 November 2020 49comments.
Real stories A lack of Government support for dementia in coronavirus: David and Catriona's story David has looked after his wife Catriona, who has dementia, for seven years. But the national coronavirus lockdown meant their network of services fell away. Here, he reflects on the impact of coronavirus on people affected by dementia. David has looked after his wife Catriona, who has dementia, for seven years. But the national coronavirus lockdown meant their network of services fell away. Here, he reflects on the impact of coronavirus on people affected by dementia. ... 27 October 2020 7comments.
Real stories My identity as a Black woman with vascular dementia is fundamental Vesna Okaikoi had a difficult childhood, not knowing who her parents were and growing up in foster care alongside her twin sister, Loraine. Now 65 years old and living with vascular dementia, Vesna reflects on the power of identity and how learning about her heritage has been a source of strength through challenging times. Vesna Okaikoi had a difficult childhood, not knowing who her parents were and growing up in foster care alongside her twin sister, Loraine. Now 65 years old and living with vascular dementia, Vesna reflects on the power of identity and how learning about her heritage has been a source of strength through challenging times. ... 15 October 2020 4comments.
Real stories Mistaking dementia for menopause: Marie’s story When primary school teacher Marie had trouble remembering words, she thought her memory loss was due to menopause. She didn’t think that at 51 she would be diagnosed with dementia. Now Marie and her family want to help raise awareness. When primary school teacher Marie had trouble remembering words, she thought her memory loss was due to menopause. She didn’t think that at 51 she would be diagnosed with dementia. Now Marie and her family want to help raise awareness. ... 06 October 2020 2comments.
Real stories Looking for joy: A carer for whom the future is scary, but whose smile is real Michelle Macadangdang says that nothing prepared her for dealing with her husband’s dementia. Michelle Macadangdang says that nothing prepared her for dealing with her husband’s dementia. ... 31 July 2020
Real stories You’re not alone: Keeping in touch and having a say, despite dementia and coronavirus Diagnosed with dementia while still in her 40s, Amanda Quinn wants others to know they have a voice. Diagnosed with dementia while still in her 40s, Amanda Quinn wants others to know they have a voice. ... 01 June 2020
Real stories Platform for change: Standing up for people affected by dementia Inspired by her father, Nimisha Sharma has been sharing her family’s story to raise the profile of dementia. Inspired by her father, Nimisha Sharma has been sharing her family’s story to raise the profile of dementia. ... 01 June 2020
Real stories Dealing with the loss of a loved one to early-onset dementia Bethan’s mum, Sharon, was diagnosed with early-onset Alzheimer’s disease aged just 56. Bethan reflects on how quickly her mum’s condition progressed, and her fundraising plans to help other people affected by dementia. Bethan’s mum, Sharon, was diagnosed with early-onset Alzheimer’s disease aged just 56. Bethan reflects on how quickly her mum’s condition progressed, and her fundraising plans to help other people affected by dementia. ... 28 May 2020 0comments.
Real stories Life during lockdown: ‘I can’t wait for this to be over so I can hug my dad again!’ Alex’s dad, Dave, was diagnosed with early onset dementia eight years ago at the age of 60. Alex reflects on how her dad came to terms with his diagnosis, and how the coronavirus pandemic has affected their relationship. Alex’s dad, Dave, was diagnosed with early onset dementia eight years ago at the age of 60. Alex reflects on how her dad came to terms with his diagnosis, and how the coronavirus pandemic has affected their relationship. ... 21 April 2020 28comments.
Real stories Change the journey: Moving from fear to hope after a dementia diagnosis Having feared the worst after his dementia diagnosis, Masood Qureshi is now focused on changing people’s perceptions. Having feared the worst after his dementia diagnosis, Masood Qureshi is now focused on changing people’s perceptions. ... 01 April 2020
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