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Real stories Caring for my dad with frontotemporal dementia - Rachel's story When Rachel's dad Paul started acting differently, she and her sisters convinced him to visit his GP. Eventually, Paul was diagnosed with frontotemporal dementia (FTD) or Pick's disease. He now lives in a residential care home that suits his needs. When Rachel's dad Paul started acting differently, she and her sisters convinced him to visit his GP. Eventually, Paul was diagnosed with frontotemporal dementia (FTD) or Pick's disease. He now lives in a residential care home that suits his needs. ... 25 February 2020 7comments.
Real stories Even more determined: Looking forward to Trek26 A supporter in Lancashire was so inspired by last year’s Trek26 that she’s set to do it again in 2020. A supporter in Lancashire was so inspired by last year’s Trek26 that she’s set to do it again in 2020. ... 31 January 2020
Real stories Laury’s story: ‘Mum became utterly lost in the fog of her own mind’ Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it. Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it. ... 20 September 2019 79comments.
Real stories Debbie's story: 'Not enough people are aware of early onset dementia, never mind understand it' At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed. At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed. ... 16 September 2019 71comments.
Real stories Raising awareness of incontinence and dementia Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with young-onset Alzheimer’s disease aged 49. Read her story, and learn why she feels the taboos around toilets must be broken. Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with young-onset Alzheimer’s disease aged 49. Read her story, and learn why she feels the taboos around toilets must be broken. ... 22 August 2019 40comments.
Real stories How cycling can improve the wellbeing of people living with dementia Peter, who is living with dementia, leads a healthy lifestyle and takes care of his well-being. With the help of his friend, Deb, Peter has penned his thoughts about his passion for cycling, and how keeping active is helping Peter live well with dementia. Peter, who is living with dementia, leads a healthy lifestyle and takes care of his well-being. With the help of his friend, Deb, Peter has penned his thoughts about his passion for cycling, and how keeping active is helping Peter live well with dementia. ... 14 August 2019 13comments.
Real stories Difficulty with deciding to move Mum with dementia into a care home Neil shared his story about caring for his mum, Yvonne, at home. Neil updates us on how they're both doing, shares his initial feelings of reluctance to move her into residential care, and some messages of support for other carers of people with dementia. Neil shared his story about caring for his mum, Yvonne, at home. Neil updates us on how they're both doing, shares his initial feelings of reluctance to move her into residential care, and some messages of support for other carers of people with dementia. ... 23 July 2019 28comments.
Real stories Mum has dementia and recognises my face but doesn't know my name Leanne's mum Hilary was diagnosed with young-onset dementia. Here, she shares her family's story and her feelings throughout their journey, from the initial signs that something was wrong to becoming a carer for her mum. Leanne's mum Hilary was diagnosed with young-onset dementia. Here, she shares her family's story and her feelings throughout their journey, from the initial signs that something was wrong to becoming a carer for her mum. ... 18 July 2019
Information Book group: Dear Alzheimer’s by Keith Oliver We hear readers’ comments about the latest book from a leading dementia advocate and Society Ambassador. We hear readers’ comments about the latest book from a leading dementia advocate and Society Ambassador. ... 03 June 2019
News Tag: News. High LDL linked to early-onset Alzheimer's – Alzheimer’s Society comment Researchers with the Atlanta Veterans Affairs Medical Center and Emory University have found a link between high LDL cholesterol levels and early-onset Alzheimer's disease. Read more
Real stories Becoming a dementia Research Network volunteer after being a carer Robert cared for his mother, who had frontotemporal dementia, until she passed away. Here Robert shares why he's passionate about dementia research and hopes other carers will get involved with the Research Network, too. Robert cared for his mother, who had frontotemporal dementia, until she passed away. Here Robert shares why he's passionate about dementia research and hopes other carers will get involved with the Research Network, too. ... 26 March 2019 8comments.
Real stories Dealing with mum's young-onset Alzheimer's diagnosis: Neil's story A diagnosis of young-onset Alzheimer's disease can turn lives upside down. But for Neil and his mum, Yvonne, their special bond remains strong. Neil shares the new challenges facing them as Yvonne's condition progresses. A diagnosis of young-onset Alzheimer's disease can turn lives upside down. But for Neil and his mum, Yvonne, their special bond remains strong. Neil shares the new challenges facing them as Yvonne's condition progresses. ... 22 February 2019 94comments.
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