Dementia with Lewy bodies (DLB) – useful resources

Useful organisations

Lewy Body Society

Telephone
0800 888 6678 (helpline answered by Dementia UK Admiral nurses, 9am–9pm Monday–Friday, 9am–5pm Saturday–Sunday)

01942 914 000 (information)

Email
[email protected]

Website
www.lewybody.org

Lewy Body Society aims to raise awareness of DLB for the general public and educate those in the medical profession and decision-making positions about all aspects of the disease. It also supports research into the disease.

Parkinson's UK

Telephone
0808 800 0303 (helpline 9am–6pm Monday–Friday, 10am–2pm Saturday)

Email
[email protected]

Website
www.parkinsons.org.uk

Parkinson’s UK provides information, advice, support and publications for people with Parkinson’s disease. It can put people in touch with their nearest branch, offering information, support and social contact for those with Parkinson’s and their families.

Review details

Last reviewed: June 2021

Next review due: June 2024

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Dr Paul Donaghy, NIHR Intermediate Clinical Fellow in Old Age Psychiatry, Newcastle University and Consultant Old Age Psychiatrist, Gateshead Health NHS Foundation Trust, and Dr Ajenthan Surendranathan, Clinical Research Associate, Department of Psychiatry, School of Clinical Medicine, University of Cambridge

This factsheet has also been reviewed by people affected by dementia.

To give feedback on this factsheet, or for a list of sources, please email [email protected]