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My partner of 30 years recently passed with dementia, she suffered with it really from 2017-18 when I noticed a sudden change and when she took early retirement, her mood changed also I noticed that her writing which was always neat started to deteriorate lots of little things were also apparent, it was slow but progressive then the obvious things like bad temper cleanliness and incontenence , she spent the last two and half in a care home there’s more to say about that but she passed away holding my hand peacefully finally free of this disease.

Mum was a very intelligent. She worked for 30+ years as a teacher of maths and English in the local jail and progressed to being the head of department. She retired aged 70
Once she retired I began to notice her struggling to find words when speaking. For someone who had spent her life teaching the English language I knew something wasn’t right. I also began to notice subtle personality changes and her getting fixated on things and them consuming her time.
During a GP appointments I raised the issue of her speech difficulties and my concerns. The doctor conducted a MOCA test which she passed and then said she definitely does not have dementia and I should stop worrying. I was not convinced.
Months passed and numerous test took place each time being told she was fine. After 8months we decided to go private and she was diagnosed with frontal temperal lobe dementia
She is no longer the woman she was. It’s my mums body but it’s no longer my mum. There aren’t conversations any more, she never asks how I am doing.
I often wonder if the GP had listened to me straight away and she had of been given the medication sooner could I of had a little bit longer of the mum I knew.

Our strong,independent, funny Mom is no more. She cared for our Dad for 10 years,suffered stage 4 cancer and survived. Then Parkinsons came but not alone,it came with dementia with lewy bodies .And now full blown Alziemers. Gone is strong Mom,but frightened, doubly incontinent, unable to communicate or recognise us. Each time she wakes a little more is missing.
We love her and she doesn't even know.
We miss her. But we wish she could have peace from this awful disease

My mum has alzimers my dad pasted 9 yrs ago and had said think something is wrong with mums head.
She has lived with ys for 5 yrs now we do everything fir her me and her carer my husband. We take her to memory lane groupeach week and a coffee morning at one of our local homes in felixstowe.

Im 39 and my mum has dementia! My mum was also diagnosed with parkinsons in her 50s so its called parkisons dementia. I have seen my dad care for her at home for years but it got too much and during covid he tried to commit suicide. I ran to my mums aid but due to her complex needs i sttuggled to cope. She went into emergency care! We battled til we couldnt anymore. Theres a stigma attached to care homes that its a bad and lonely place so my dad staved off asking the council for help to get her in financially. I had to tell him enough was enough. We got in touch with social workers which told us we could get full funding for a home. Something he did not know, and im sure he would have done sooner if only he did know. She is now in a care home paranoid and scared shes been abandoned as he doesnt understand its for her safety. I had a dream last night that my mum was trying to get on a bus, she had her walking stick and only just managed to get on grabbing the back, outer edge of it...she fell as the bus reversed onto her body and then dragged her until the bus got on a ferry, dropping her off the edge of a pier. I was screaming her name "mum, mum!" And ran to the edge of the pier with my arm outstretched. I woke myself up calling her name and noticed i was on the edge of my bed with an outstretched arm. I feel i've lost my mum but im not allowed to grieve until she passes! She has fallen from who she was! She is being dragged to where she doesnt want to be and i can do nothing. I wish the government would put in place help for carers like my dad so they dont just get support after the fact they try to commit suicide. I want carers to be completely informed that financial support is available if 24/7 care is needed. My parents come from a generation in which you just got on with it and dont ask for help and that is dangerous! More funding also for charities which pair elderly up with someone to just chat with ladies like my mum. For me now, i try to talk to my mum but she only now barks orders to me because her parkinsons gives her pain. My daughter/mum relationship has gone! Please help families like mine so our nightmares arent there to haunt us. My mum deserves to not feel lonely, my dad deserves not to feel guilt now shes in a home and we all need mental health support which is not second rate. Thank you, written by a daughter that cares.

I know I am at the earliest stages but my GP can't understand as I am too young.
Also I was diagnosed with early menopause as at the age of 40.
I know my symptoms I forget things all the time and I can't remember what I talk about a few minutes later

Sadly in January this year dementia took away my beautiful Mum she was only 55 and the pain we felt and still feel today and everyday is so hard to explain it’s took just 3 months for this disease to completly strip my mum of everything she was we and we are still waiting for post mortem results of tests for Creutzfeldt-Jakob disease due to the rapid decline and symptoms, my wish is that doctors take things more serious in younger people and not just brush symptoms off we were lucky to have an amazing medical team who eventually helped us and I want the government to start putting more efforts and funds in to helping families like mine as it’s so hard to know where to turn at times.