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Wow...where do I start?
My dad was diagnosed age 63...
My lovely mam was diagnosed with...
Having cared for John through cancer and a heart...
My Grandma got dementia when I was 5, she passed away with it when I was 10. I never truly got to know her, when I was at school I would find myself worrying about her...
Alzheimer’s & Dementia is a very cruel illness, so...
What happens when I am no longer able to look after...
Dear Alzheimers
November 16th 2016 is a date that...
Stranger on the Street
My eyes close for a brief second and my head tilts up towards the sky as I savour the feeling of the sun’s warmth on my skin before it’s...
My husband David is 76, he has just been diagnosed with very early onset Alzheimer's last week. He has been put on tablets 5mg to start with for 4 weeks and if no...
My Father’s Alzheimer’s
It started quietly, almost imperceptibly—little slips, brief absences. We thought it was just fatigue, nothing serious. But soon, he...
Dad, I wish I could live in your world, see life through your eyes, so I wouldn’t have to see how much this illness has transformed the father I love so much.
Dad,...
My husband has been diagnosed with frontal temporal...
Wow...where do I start?
My dad was diagnosed age 63 with Alzheimers in Feb 2024 and it's been a hard pill to swallow. I also lost my Nan to this diease which was so sad to watch. At such a young age to experience this has been challenging mentally. Navigating the Dementia path is a bundle of emotions. Myself and my brother have felt lost a times and have spent the last year completing endless amounts of paperwork. The different hurdles you have to jump with the different systems can be very stressful a times. Followed with the pressure of making the right decisions. The impact is life changing for your loved ones aswell as the family.
I wish there was some sort of training for families that experience Dementia. Understanding their characteristics, why they do certain things? How to respond and deal with certain situations?
I feel like the past year has been a journey of grief as my dad has changed so much. Our coping mechanisms as siblings have been humour and laughs... followed by sadness and frustration. All I wish is that the next part of the journey is not to challenging.
Thankyou for listening to my story.
Georgia x
Picture of my dad at Christmas still full of laughs!
My dad was diagnosed age 63 with Alzheimers in Feb 2024 and it's been a hard pill to swallow. I also lost my Nan to this diease which was so sad to watch. At such a young age to experience this has been challenging mentally. Navigating the Dementia path is a bundle of emotions. Myself and my brother have felt lost a times and have spent the last year completing endless amounts of paperwork. The different hurdles you have to jump with the different systems can be very stressful a times. Followed with the pressure of making the right decisions. The impact is life changing for your loved ones aswell as the family.
I wish there was some sort of training for families that experience Dementia. Understanding their characteristics, why they do certain things? How to respond and deal with certain situations?
I feel like the past year has been a journey of grief as my dad has changed so much. Our coping mechanisms as siblings have been humour and laughs... followed by sadness and frustration. All I wish is that the next part of the journey is not to challenging.
Thankyou for listening to my story.
Georgia x
Picture of my dad at Christmas still full of laughs!
Georgia
My lovely mam was diagnosed with Alzheimer’s/vascular dementia over 4 years ago. She takes medication and her deterioration has been slow but significant. My dad was the main carer but he now has dementia, though he is still undiagnosed. We have struggled to get him seen and properly diagnosed, even though he recently had 2 months in hospital (told ‘the GP will refer’). They both have other medical issues too. They both refuse external help and it’s just them living together - their situation is deteriorating rapidly, but they don’t realise. It is so sad to see them living in a way that is not them. There is no reasoning with them though - they think they can manage. My sister and I have to do lots every day - shopping, cooking, cleaning and house ‘stuff’. I have a full time job and it’s draining.
I wish other services could do more to help us (but because mam and dad refuse help, they get no help currently).
I am physically and mentally drained.
I would like to spend more quality time with them, to talk about the past, rather than just sorting their daily living issues out and being tired and irritable.
I’ve almost lost my parents and it’s so heartbreaking to watch it happen in slow motion.
I wish other services could do more to help us (but because mam and dad refuse help, they get no help currently).
I am physically and mentally drained.
I would like to spend more quality time with them, to talk about the past, rather than just sorting their daily living issues out and being tired and irritable.
I’ve almost lost my parents and it’s so heartbreaking to watch it happen in slow motion.
Kerry
Having cared for John through cancer and a heart bypass I would prefer either of those any day to this. It’s heartbreaking watching the decline & wondering what symptom is next. It reels you in on good days then a new/worse symptom occurs. John has a good quality of life. Dog walks golf with very patient mates all make a huge difference but ultimately it’s lonely for be the carer. We used to talk all the time not anymore he’s lost his confidence along with his memory. Knowing it’s only going to get worse is frightening. Age UK have been incredible. I have been on a carers course which was helpful and meeting others in a similar situation was supportive. He also now attends a memory group every week. A support group I created on what’s app has been useful of his friends to take him for coffee or golf has been great. Don’t be afraid of asking for help it’s proved really good for both of us . It’s what lies ahead that really scares me.
Moya
My Grandma got dementia when I was 5, she passed away with it when I was 10. I never truly got to know her, when I was at school I would find myself worrying about her and my grandad. Whenever my mums phone rang and it was my grandad my heart skipped a beat, I will never forget the phone where my mum was told her mum died. A part of me will always be angry at dementia for taking my grandma away from me and for it taking away my mum’s mum, I can tell she misses her every day. Walking behind her coffin was the hardest thing I had to do, I wish that on no other person no matter how old they are. Something needs to change, my grandma had my grandad and family to help her, what about those who don’t have that. Dementia is more than just ‘memory lost’, dementia is why my grandma won’t see me graduate, marry, she won’t see her great grandchildren. There are so many things I want to ask her, but the biggest one I ask myself and my mum daily, is she proud of me?
Chloe
Alzheimer’s & Dementia is a very cruel illness, so I want the Government to put more money 💰 into RESEARCH 🔬 , my Mum use to just sit in a chair 🪑 crying 😭 also didn’t know when she wanted to go to toilet 🚻 and use mess herself, my Mum had no Quality of life why should anyone have to suffer like this that why I want the governments help because only by giving money 💰 to research 🔬 is the way to find a treatment to stop 🛑 this very cruel illness. That’s help ALL people with Alzheimer’s
Debbie
What happens when I am no longer able to look after my wife?
I stopped working to look after my wife of 40 years after her Altheimer's diagnoses and after seeing what goes on in care homes.
I am determined to keep her out of care homes and look after her myself but my own health has deteriorated to such an extent I could be passing first.
There remains little or no help with many organisations relying on volunteers. So what happens when I am no longer able to look after my wife, will she be condemned to stay in bed most of the time due to lack of staff, will she end up with bed sores due to staff not having the time to repositioning her, will her asthma be the final straw leaving her to pass away on her own. Neither of use asked for this, but we have become worthless, not valued or listened to.
I stopped working to look after my wife of 40 years after her Altheimer's diagnoses and after seeing what goes on in care homes.
I am determined to keep her out of care homes and look after her myself but my own health has deteriorated to such an extent I could be passing first.
There remains little or no help with many organisations relying on volunteers. So what happens when I am no longer able to look after my wife, will she be condemned to stay in bed most of the time due to lack of staff, will she end up with bed sores due to staff not having the time to repositioning her, will her asthma be the final straw leaving her to pass away on her own. Neither of use asked for this, but we have become worthless, not valued or listened to.
stephen
Dear Alzheimers
November 16th 2016 is a date that will stick in my mind forever. It’s the day you took Mum from us. She suffered for a little over 8 years with your incessant and relentless pursuit to switch off the lights in her brain one by one, rendering her unable to walk, struggle to talk and unable to feed herself. Luckily you didn’t manage to get too much of a handle on her memory. It was jumbled, erratic, but she knew my face. Thank god she knew my face. Thank you for that small show of mercy.
I noticed in around the September before she passed that you were deleting more and more of her and she seemed very lifeless at times. She was also in pain a lot. The nurses at the respite home where she resided called me in one day to talk to them along with a specialist who informed me ‘there isn’t much time now’… You had managed to begin the process of shutting off her renal system.. the last light switch that you would press. Those words ‘there isn’t much time now’ seemed to echo around my head yet didn’t throw me into the panic I expected them to. I felt warm and calm. This was confusing to me. I expected an outpouring of emotion and upset, I expected to be howling at the moon with tears streaming down my face. But I wasn’t. I went home, poured a glass of wine and watched the television for a while. What was going on? Why was I acting this way. Then it dawned on me.. that feeling I was experiencing, the calm warmness… it was relief. You made me feel relief that my Mother was going to pass. But at least she would be free from you, like the ending of a toxic relationship.. you just feel relief.
I messaged my sister who was living in Spain at the time. I told her she needed to get here, we didn’t have long.
I went in to see Mum as usual. Mostly she slept. I would feed her when she woke. I tried to have conversation with her but she didn’t speak much. I so wanted to have meaningful connection with her as this would be one of the last times ever that I could, but I realised just being there and holding her hand was enough whilst you, the beast inside her, slept for now…
My sister was due to arrive the following day, I decided to go in and see Mum once again just for that last time with the two of us only before things got too grainy with emotions. Again, she mostly slept. As I was about to leave she opened her eyes, ‘Karen!’ she said. I looked round and she was just looking at me. I walked back to her bed. ‘Hey you! I was wondering when you’d wake up’
She took my hand ‘would you please cuddle me?’ she asked. She seemed lucid, almost ‘normal’ this took me very much by surprise. Ha! You didn’t get all of her yet did you?!
I held my Mother and as I did so she said ‘are you proud of me?’ I looked at her, she had tears in her eyes.. ‘Yes of course I am, I always have been’ I said and gently brushed the tears from her cheeks. I remembered how much I loved the feel of her skin, it was always so soft.
‘Look after your sister please, you’re all each other has’ she continued…
‘Of course Mum, don’t worry about that’
I closed my eyes and fought back the tears.
Her grip on me started to loosen and she was once again sleeping. I didn’t know it then but that was the last time I would see her conscious and the last time I would hear her voice. Alzheimer’s, you had just pressed the final switch…
My sister arrived the following day and we spent 2 days at Mums bedside. The first day was very emotional, a lot of tears. A doctor was called in to administer an injection as Mum had started to spasm a lot. No doubt the result of her system now starting to shut down. The second day was more lighthearted. My sister and I reminisced about our younger years and mums involvement. We reminded ourselves of her wicked sense of humour and her love of a big glass of wine and a ciggie. As we left that day, I turned back to the bed where mum lay and kissed her on the cheek ‘you can go now, it’s ok, we’ll be fine’ I whispered in her ear. We left.
I received a phone call 2 hours later from the home. The home manager asked that we come back .. she had tears in her voice. We raced back but we missed mum by about 5 minutes. She had passed away. I feel that was by design. If I had kids I would not want them to see me exit this world.
The rest is now history. We grieve still and always will.
Alzheimer’s you robbed us of years with our mother and you make no apologies. You continue your vile work robbing families of their loved ones. Some you take much sooner than you should, you’re getting greedy. But we will stop you one day. We will end your reign of terror. Just give us time.
I’ll never forgive you for what you’ve done and won’t rest until you pay the price.
November 16th 2016 is a date that will stick in my mind forever. It’s the day you took Mum from us. She suffered for a little over 8 years with your incessant and relentless pursuit to switch off the lights in her brain one by one, rendering her unable to walk, struggle to talk and unable to feed herself. Luckily you didn’t manage to get too much of a handle on her memory. It was jumbled, erratic, but she knew my face. Thank god she knew my face. Thank you for that small show of mercy.
I noticed in around the September before she passed that you were deleting more and more of her and she seemed very lifeless at times. She was also in pain a lot. The nurses at the respite home where she resided called me in one day to talk to them along with a specialist who informed me ‘there isn’t much time now’… You had managed to begin the process of shutting off her renal system.. the last light switch that you would press. Those words ‘there isn’t much time now’ seemed to echo around my head yet didn’t throw me into the panic I expected them to. I felt warm and calm. This was confusing to me. I expected an outpouring of emotion and upset, I expected to be howling at the moon with tears streaming down my face. But I wasn’t. I went home, poured a glass of wine and watched the television for a while. What was going on? Why was I acting this way. Then it dawned on me.. that feeling I was experiencing, the calm warmness… it was relief. You made me feel relief that my Mother was going to pass. But at least she would be free from you, like the ending of a toxic relationship.. you just feel relief.
I messaged my sister who was living in Spain at the time. I told her she needed to get here, we didn’t have long.
I went in to see Mum as usual. Mostly she slept. I would feed her when she woke. I tried to have conversation with her but she didn’t speak much. I so wanted to have meaningful connection with her as this would be one of the last times ever that I could, but I realised just being there and holding her hand was enough whilst you, the beast inside her, slept for now…
My sister was due to arrive the following day, I decided to go in and see Mum once again just for that last time with the two of us only before things got too grainy with emotions. Again, she mostly slept. As I was about to leave she opened her eyes, ‘Karen!’ she said. I looked round and she was just looking at me. I walked back to her bed. ‘Hey you! I was wondering when you’d wake up’
She took my hand ‘would you please cuddle me?’ she asked. She seemed lucid, almost ‘normal’ this took me very much by surprise. Ha! You didn’t get all of her yet did you?!
I held my Mother and as I did so she said ‘are you proud of me?’ I looked at her, she had tears in her eyes.. ‘Yes of course I am, I always have been’ I said and gently brushed the tears from her cheeks. I remembered how much I loved the feel of her skin, it was always so soft.
‘Look after your sister please, you’re all each other has’ she continued…
‘Of course Mum, don’t worry about that’
I closed my eyes and fought back the tears.
Her grip on me started to loosen and she was once again sleeping. I didn’t know it then but that was the last time I would see her conscious and the last time I would hear her voice. Alzheimer’s, you had just pressed the final switch…
My sister arrived the following day and we spent 2 days at Mums bedside. The first day was very emotional, a lot of tears. A doctor was called in to administer an injection as Mum had started to spasm a lot. No doubt the result of her system now starting to shut down. The second day was more lighthearted. My sister and I reminisced about our younger years and mums involvement. We reminded ourselves of her wicked sense of humour and her love of a big glass of wine and a ciggie. As we left that day, I turned back to the bed where mum lay and kissed her on the cheek ‘you can go now, it’s ok, we’ll be fine’ I whispered in her ear. We left.
I received a phone call 2 hours later from the home. The home manager asked that we come back .. she had tears in her voice. We raced back but we missed mum by about 5 minutes. She had passed away. I feel that was by design. If I had kids I would not want them to see me exit this world.
The rest is now history. We grieve still and always will.
Alzheimer’s you robbed us of years with our mother and you make no apologies. You continue your vile work robbing families of their loved ones. Some you take much sooner than you should, you’re getting greedy. But we will stop you one day. We will end your reign of terror. Just give us time.
I’ll never forgive you for what you’ve done and won’t rest until you pay the price.
Karen
Stranger on the Street
My eyes close for a brief second and my head tilts up towards the sky as I savour the feeling of the sun’s warmth on my skin before it’s taken away from me by the row of houses on my right. The shadows cast by the large semi-detached homes, with chimney topped slanted roofs, cause a brief chill to run up my spine and my shoulders to tense, my hands retreat into the sleeves of my cornflower blue hoodie. The homes are a mixture of red and brown brick, with a couple of multi-hued beige pebbledash, and some grey and white painted. Each house showcases its individuality, subconsciously highlighting the generational differences between the occupiers of the homes, but each house would never be able to escape the traditional British architecture it represents.
“Hiya.” I greet, smiling at the older woman walking towards me, a small white Westie plodding along beside her.
“Alright?” She replies, smiling back at me.
Cars continue to whizz passed me, their loud roaring engines sounding only like a low hum to my ears, the pop music playing in my earphones helping to cancel out the traffic. Silver, red, white, and black cars drive passed at varying speeds – no one seems to enjoy the 20mph speed limit out in the countryside. Their music filters out of cracked windows and through the cheap material of their car’s exterior, badly installed exhausts obnoxiously thunder down the road and every dog they pass jumps in fright and barks.
“The club’s closed on a Thursday.” An elderly man states, but it comes through muffled and I double tap my right earbud to pause the music.
The man is traditional in stature, the typical short, stocky build of a Welshman. The type that played rugby in his youth and made it his entire personality, because he was just that good. The type that was sent underground to mine coal before he was even 16, because he was the eldest son and had to help his parents out with the bills. He wears a light green shirt with dainty white stripes running through it, chocolate brown corduroy trousers, and a dark muted green fleece – his hands stuffed in the pockets.
“Pardon?”
“Club’s closed on a Thursday.” He repeats, straight smile planted on his old face as though he’s annoyed at himself for not realising the ‘WH’ (Seven Sisters Miner’s Welfare Hall) is closed. I notice the multiple minute wrinkles at the corners of his bright eyes and his mouth, looking like the imprint of a thousand little sparrow’s feet in sand. So many years lived on this earth, so many memories had and shared.
“Oh, is it? Well, it is a Thursday to be fair.”
“Is it? I don’t know where I am most days.” He chuckles deeply, his small eyes crinkling at the edges until it looks as though his eyelids have completely closed.
“Ah that’s okay, I think we all get like that sometimes.” I smile, laughing lightly, feeling this unfamiliar delicate prickling in the pit of my stomach as I continue to stare at this man. I can’t discern exactly what the feeling is, I just know the uncomfortableness of it, the unease it sets in my bones, the need to rid my body of it.
I want to leave this moment.
“Where are you off to then?” He asks politely, that older generational need to make passing conversation with the people on the street, coming through.
I scratch my eyebrow lightly and point straight in front of me, “Just to the top of the houses and back, up Pantyffordd way.”
“Pantyffordd girl, are you?”
The corners of my smile slip, and I reign it in, closing my lips over my teeth, masking the sadness enveloping me like a tight hug from someone you haven’t seen in a while, compressing you so intensely that you’re left feeling breathless. I shake my head and lean all of my weight onto my right hip, tucking my hands into the large pocket of my hoodie, hiding my fidgety digits. They nervously pick at each other, pulling on the bits of skin running down beside my nails and fiddle with the rings adorning each finger.
I really want to go.
“No, no, I’m a Seven girl. I live on Heol-y-waun. I have all my life.” I reply, hoping my tone sounds cheerful enough to his ears – although I may be in luck because he’s wearing hearing aids.
He raises his eyebrows in surprise, as though he can’t understand how this is the first time he is ever seeing me, wondering how he hasn’t bumped into me before now, in a village as small as ours. “Oh right, well I’m an old Seven boy, I just live down on Mary Street with my wife, but I’ve lived in different parts of Seven my whole life.”
“Aw lovely mun.” I reply.
“Yes, well, I’ll leave you get back to your walk. It was nice speaking to you.” His voice is genuine, I can tell he means it.
“Thank you, it was lovely speaking to you too. Get home safe now.”
“Oh, don’t worry love, I will, ta-da now.” He waves me off, slowly moving off back down the way I had just came.
“Buh-bye.” I turn away and start walking, tears instantly fall freely down my cheeks, and I try to subdue the bouldering blubbery sob that comes barrelling up my throat and out my wet mouth.
Some days my grandfather, my dad, remembers me. He remembers the times he held me when I was born, just a small thing in his large arms. He remembers the time he calmed me down when I fell off my scooter outside his house, gently placing a bag of frozen peas onto my sprained arm. He remembers the times we’d go out for dinner every week, ordering the exact same thing off the menu and talking about the times of his youth, when he spent six weeks motorcycling around Europe.
Today was not one of those days.
Today I was a stranger in his bright, kind eyes.
My eyes close for a brief second and my head tilts up towards the sky as I savour the feeling of the sun’s warmth on my skin before it’s taken away from me by the row of houses on my right. The shadows cast by the large semi-detached homes, with chimney topped slanted roofs, cause a brief chill to run up my spine and my shoulders to tense, my hands retreat into the sleeves of my cornflower blue hoodie. The homes are a mixture of red and brown brick, with a couple of multi-hued beige pebbledash, and some grey and white painted. Each house showcases its individuality, subconsciously highlighting the generational differences between the occupiers of the homes, but each house would never be able to escape the traditional British architecture it represents.
“Hiya.” I greet, smiling at the older woman walking towards me, a small white Westie plodding along beside her.
“Alright?” She replies, smiling back at me.
Cars continue to whizz passed me, their loud roaring engines sounding only like a low hum to my ears, the pop music playing in my earphones helping to cancel out the traffic. Silver, red, white, and black cars drive passed at varying speeds – no one seems to enjoy the 20mph speed limit out in the countryside. Their music filters out of cracked windows and through the cheap material of their car’s exterior, badly installed exhausts obnoxiously thunder down the road and every dog they pass jumps in fright and barks.
“The club’s closed on a Thursday.” An elderly man states, but it comes through muffled and I double tap my right earbud to pause the music.
The man is traditional in stature, the typical short, stocky build of a Welshman. The type that played rugby in his youth and made it his entire personality, because he was just that good. The type that was sent underground to mine coal before he was even 16, because he was the eldest son and had to help his parents out with the bills. He wears a light green shirt with dainty white stripes running through it, chocolate brown corduroy trousers, and a dark muted green fleece – his hands stuffed in the pockets.
“Pardon?”
“Club’s closed on a Thursday.” He repeats, straight smile planted on his old face as though he’s annoyed at himself for not realising the ‘WH’ (Seven Sisters Miner’s Welfare Hall) is closed. I notice the multiple minute wrinkles at the corners of his bright eyes and his mouth, looking like the imprint of a thousand little sparrow’s feet in sand. So many years lived on this earth, so many memories had and shared.
“Oh, is it? Well, it is a Thursday to be fair.”
“Is it? I don’t know where I am most days.” He chuckles deeply, his small eyes crinkling at the edges until it looks as though his eyelids have completely closed.
“Ah that’s okay, I think we all get like that sometimes.” I smile, laughing lightly, feeling this unfamiliar delicate prickling in the pit of my stomach as I continue to stare at this man. I can’t discern exactly what the feeling is, I just know the uncomfortableness of it, the unease it sets in my bones, the need to rid my body of it.
I want to leave this moment.
“Where are you off to then?” He asks politely, that older generational need to make passing conversation with the people on the street, coming through.
I scratch my eyebrow lightly and point straight in front of me, “Just to the top of the houses and back, up Pantyffordd way.”
“Pantyffordd girl, are you?”
The corners of my smile slip, and I reign it in, closing my lips over my teeth, masking the sadness enveloping me like a tight hug from someone you haven’t seen in a while, compressing you so intensely that you’re left feeling breathless. I shake my head and lean all of my weight onto my right hip, tucking my hands into the large pocket of my hoodie, hiding my fidgety digits. They nervously pick at each other, pulling on the bits of skin running down beside my nails and fiddle with the rings adorning each finger.
I really want to go.
“No, no, I’m a Seven girl. I live on Heol-y-waun. I have all my life.” I reply, hoping my tone sounds cheerful enough to his ears – although I may be in luck because he’s wearing hearing aids.
He raises his eyebrows in surprise, as though he can’t understand how this is the first time he is ever seeing me, wondering how he hasn’t bumped into me before now, in a village as small as ours. “Oh right, well I’m an old Seven boy, I just live down on Mary Street with my wife, but I’ve lived in different parts of Seven my whole life.”
“Aw lovely mun.” I reply.
“Yes, well, I’ll leave you get back to your walk. It was nice speaking to you.” His voice is genuine, I can tell he means it.
“Thank you, it was lovely speaking to you too. Get home safe now.”
“Oh, don’t worry love, I will, ta-da now.” He waves me off, slowly moving off back down the way I had just came.
“Buh-bye.” I turn away and start walking, tears instantly fall freely down my cheeks, and I try to subdue the bouldering blubbery sob that comes barrelling up my throat and out my wet mouth.
Some days my grandfather, my dad, remembers me. He remembers the times he held me when I was born, just a small thing in his large arms. He remembers the time he calmed me down when I fell off my scooter outside his house, gently placing a bag of frozen peas onto my sprained arm. He remembers the times we’d go out for dinner every week, ordering the exact same thing off the menu and talking about the times of his youth, when he spent six weeks motorcycling around Europe.
Today was not one of those days.
Today I was a stranger in his bright, kind eyes.
Bethan
My husband David is 76, he has just been diagnosed with very early onset Alzheimer's last week. He has been put on tablets 5mg to start with for 4 weeks and if no reaction these will be up to 10mg. Our doctor has had the letter for nearly a week and we are still awaiting the prescription. We have seem to have been left to our own devices.
Gwendolen
My Father’s Alzheimer’s
It started quietly, almost imperceptibly—little slips, brief absences. We thought it was just fatigue, nothing serious. But soon, he began to lose his way, even on routes he knew by heart. We begged him to see a doctor, but he refused. “I’m not sick, what’s the point?” he said, with the stubborn confidence we knew so well.
Then the diagnosis came: Alzheimer’s. One word, and our world shattered. He was so young, too young for something like this. Yet the disease marched forward, relentless, stealing his memories and unraveling his sense of self. He started forgetting faces, words, simple routines. It was as though parts of him were disappearing, piece by piece, right in front of us.
We tried to learn, to adapt, to make sense of this new reality. We read medical guides, sought advice, and clung to hope. But no book, no preparation could ease the heartbreak of watching someone you love fade away a little more each day.
We are trapped in a storm of emotions: anger at the unfairness, sorrow at what we’ve already lost, and fear of what’s still to come. Every smile he gives us feels like a small triumph, but every empty gaze tears us apart.
It’s been nearly six years. Acceptance? It feels unreachable. The man who was our strength and light is slipping away, and we’re powerless to stop it.
It started quietly, almost imperceptibly—little slips, brief absences. We thought it was just fatigue, nothing serious. But soon, he began to lose his way, even on routes he knew by heart. We begged him to see a doctor, but he refused. “I’m not sick, what’s the point?” he said, with the stubborn confidence we knew so well.
Then the diagnosis came: Alzheimer’s. One word, and our world shattered. He was so young, too young for something like this. Yet the disease marched forward, relentless, stealing his memories and unraveling his sense of self. He started forgetting faces, words, simple routines. It was as though parts of him were disappearing, piece by piece, right in front of us.
We tried to learn, to adapt, to make sense of this new reality. We read medical guides, sought advice, and clung to hope. But no book, no preparation could ease the heartbreak of watching someone you love fade away a little more each day.
We are trapped in a storm of emotions: anger at the unfairness, sorrow at what we’ve already lost, and fear of what’s still to come. Every smile he gives us feels like a small triumph, but every empty gaze tears us apart.
It’s been nearly six years. Acceptance? It feels unreachable. The man who was our strength and light is slipping away, and we’re powerless to stop it.
Fath
Dad, I wish I could live in your world, see life through your eyes, so I wouldn’t have to see how much this illness has transformed the father I love so much.
Dad, in my memories, I trusted yours. Today, I’m 24, and the father I knew as a child no longer exists… When I started opening my eyes to the world, you began closing yours.
I can still hold you tightly in my arms and spend time with you, yet I cry every time I think about you.
I wish, Dad, that I had more time to love you, to tell you how much you mean to me… But life steals our moments, our laughter, our togetherness, leaving behind an immense void that nothing can fill.
Dad, I’m scared of the day when your gaze no longer recognizes me, when my name will no longer echo in your memory. Scared of no longer being the daughter you cherish so much. But my love for you will remain etched, intact, in my heart, even when yours forgets.
Dad, you know, I’ve lost count of the days I’ve emptied myself of tears, realizing that nothing will ever be the same again. Nothing matters anymore—you’re not invincible…
Are you really leaving us, Dad? Is this reality true? I realize, with regret, that life will never be the same.
You are so fragile now, so vulnerable in the face of this overwhelming reality.
But don’t worry, don’t be afraid—I will stay by your side until the end of this journey, the one trying to take you far from us, far from everything.
Dad, in my memories, I trusted yours. Today, I’m 24, and the father I knew as a child no longer exists… When I started opening my eyes to the world, you began closing yours.
I can still hold you tightly in my arms and spend time with you, yet I cry every time I think about you.
I wish, Dad, that I had more time to love you, to tell you how much you mean to me… But life steals our moments, our laughter, our togetherness, leaving behind an immense void that nothing can fill.
Dad, I’m scared of the day when your gaze no longer recognizes me, when my name will no longer echo in your memory. Scared of no longer being the daughter you cherish so much. But my love for you will remain etched, intact, in my heart, even when yours forgets.
Dad, you know, I’ve lost count of the days I’ve emptied myself of tears, realizing that nothing will ever be the same again. Nothing matters anymore—you’re not invincible…
Are you really leaving us, Dad? Is this reality true? I realize, with regret, that life will never be the same.
You are so fragile now, so vulnerable in the face of this overwhelming reality.
But don’t worry, don’t be afraid—I will stay by your side until the end of this journey, the one trying to take you far from us, far from everything.
My husband has been diagnosed with frontal temporal dementia it shows in his movements and lack of ability to speak. He is highly intelligent and all the knowledge of his horticultural career is inside his head he has not forgotten it but cannot express it in words. His frustration must be unbearable.
Dementia needs to be talked about, it feels like when you do you get a sympathetic pat on the shoulder and a I know someone too. Every Dementia is different how do I tell whats normal and if it’s normal today, it may not be tomorrow. It’s isolating even though friends want to help. How do I know what help we need.
I never thought it possible to feel so much love and helplessness at the same time.
Government needs to help bring this out into the open, assist those caring to find support and change systems so they can access financial help, advertise whats available and make it easier to access things like attendance allowance, blue badge … its not that he cannot walk he cannot be left or allowed to safely walk through a car park.
Family is everything to him his face lights when he sees his grandchildren. There is life with dementia but we can’t expend energy fighting for it.
Dementia needs to be talked about, it feels like when you do you get a sympathetic pat on the shoulder and a I know someone too. Every Dementia is different how do I tell whats normal and if it’s normal today, it may not be tomorrow. It’s isolating even though friends want to help. How do I know what help we need.
I never thought it possible to feel so much love and helplessness at the same time.
Government needs to help bring this out into the open, assist those caring to find support and change systems so they can access financial help, advertise whats available and make it easier to access things like attendance allowance, blue badge … its not that he cannot walk he cannot be left or allowed to safely walk through a car park.
Family is everything to him his face lights when he sees his grandchildren. There is life with dementia but we can’t expend energy fighting for it.
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