What is Involvement?
The Involvement team offers opportunities to people affected by dementia to use their personal experiences to help shape the work that Alzheimer's Society does.
We enable people living with dementia, their carers, friends and family, to be a force for change, within Alzheimer's Society and beyond it.
There are many ways to take part such as
- shaping our strategy
- influencing our Trustees and leaders
- co-creating innovative solutions to challenges of daily living
- joining our directors to speak to Members of Parliament and conferences
- influencing business and organisations to become more dementia-friendly
- working with volunteers in local communities to make them more inclusive and dementia-friendly
- reviewing publications
- helping us recruit staff
- taking part in group discussions...
and much more.
Why is it important to us to learn from lived experience?
We want to be there for anyone affected by dementia. We can only do that when we have a diverse range of lived experience informing and shaping all we do. This is key to Alzheimer's Society's corporate strategy.
Types of dementia our dementia voice volunteers are living with include: Alzheimer's Disease, Dementia with Lewy Bodies, Fronto-Temporal Dementia, Mixed dementia, Parkinson's disease-related dementia, Pick's disease, P.C.A. (Posterior Cortical Atrophy), and Vascular dementia.
Introducing some of the people who've got involved in 2021
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Peter's story - including through his video diary about the ups and downs of living with dementia.
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Morcea's blog about addressing big issues that Black people with dementia face in the UK
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Patrick's story - including his video interview for his work on LGBTQ+ inclusion
Get involved in our work
If you are interested in getting involved or want to know more information, don’t hesitate to get in touch with us by completing a short enquiry form.