Real stories Working in a care home during coronavirus - Ellie's story Ellie has been working in a care home during the pandemic providing crucial support for residents, many of whom have dementia. Ellie hopes that sharing her experience will reassure people who are unable to visit their loved ones in care while there are visiting restrictions in place. Ellie has been working in a care home during the pandemic providing crucial support for residents, many of whom have dementia. Ellie hopes that sharing her experience will reassure people who are unable to visit their loved ones in care while there are visiting restrictions in place. ... 17 September 2020 4comments.
News The Roads Not Taken: A film depicting a day in the life of a father with frontotemporal dementia Sally Potter, the director of The Roads Not Taken, shares the inspiration behind her latest film. Sally hopes people affected by dementia will recognise the experiences portrayed, and the film will help to challenge assumptions about the condition. Sally Potter, the director of The Roads Not Taken, shares the inspiration behind her latest film. Sally hopes people affected by dementia will recognise the experiences portrayed, and the film will help to challenge assumptions about the condition. ... 11 September 2020 6comments.
Real stories Being a keyworker and carer during coronavirus Tony and his wife Pauline, who has dementia and lives in a nursing home, were kept apart for over three months because of coronavirus. Even as the Government opened care homes to socially distanced visits, these types of visits don’t suit Pauline’s needs, nor do they acknowledge Tony having key worker status to support her care. Tony and his wife Pauline, who has dementia and lives in a nursing home, were kept apart for over three months because of coronavirus. Even as the Government opened care homes to socially distanced visits, these types of visits don’t suit Pauline’s needs, nor do they acknowledge Tony having key worker status to support her care. ... 07 September 2020 40comments.
Real stories ‘With Alzheimer’s, you are constantly in a state of grieving’: Loretta’s dementia story When Loretta's mum, Dinah, was diagnosed with young-onset dementia, Loretta began to grieve for the person she was before her diagnosis. Dinah sadly passed away in 2020, which has led Loretta to reflect on her personal experience as a carer. When Loretta's mum, Dinah, was diagnosed with young-onset dementia, Loretta began to grieve for the person she was before her diagnosis. Dinah sadly passed away in 2020, which has led Loretta to reflect on her personal experience as a carer. ... 25 August 2020 39comments.
Real stories Living with memory loss – Creating a short film with my grandfather’s old footage Following the passing of his grandfather, David found his old film reels and created a short film, which was broadcast by the BBC. David reflects on their relationship before dementia, and how the condition affected his grandfather in his later years. Following the passing of his grandfather, David found his old film reels and created a short film, which was broadcast by the BBC. David reflects on their relationship before dementia, and how the condition affected his grandfather in his later years. ... 18 August 2020 0comments.
Real stories A dementia poem about my mum and care home restrictions Jane has written a heart-breaking poem about how coronavirus has affected her and her mother, who has dementia. She shares her worries about her mum's quality of life when there were visitor restrictions in place for care homes. Jane has written a heart-breaking poem about how coronavirus has affected her and her mother, who has dementia. She shares her worries about her mum's quality of life when there were visitor restrictions in place for care homes. ... 14 August 2020 62comments.
Real stories Why I take part in Memory Walk: Jeanette's story After being diagnosed with Alzheimer’s disease at 56 years old, Malcolm sadly passed away in 2018. His wife Jeanette remains passionate about fundraising for Alzheimer’s Society, and explains why she continues to take part in Memory Walk. After being diagnosed with Alzheimer’s disease at 56 years old, Malcolm sadly passed away in 2018. His wife Jeanette remains passionate about fundraising for Alzheimer’s Society, and explains why she continues to take part in Memory Walk. ... 13 August 2020 2comments.
Research 5 hopeful takeaways from the world’s biggest dementia research conference Dementia research has been hit hard by the pandemic. But at the Alzheimer’s Association International conference (AAIC), the biggest dementia research conference in the world, there was plenty to feel hopeful about. Dementia research has been hit hard by the pandemic. But at the Alzheimer’s Association International conference (AAIC), the biggest dementia research conference in the world, there was plenty to feel hopeful about. ... 04 August 2020 6comments.
Real stories Dementia and Lockdown: 'This must be what you live with every day, Grandma' As the coronavirus lockdown restrictions in the UK begin to ease, 13 year old A'yaan thinks about his grandmother, who has Alzheimer's disease. We have published A'yaan's piece here completely unedited. As the coronavirus lockdown restrictions in the UK begin to ease, 13 year old A'yaan thinks about his grandmother, who has Alzheimer's disease. We have published A'yaan's piece here completely unedited. ... 31 July 2020 14comments.
Real stories Mum's loss of expressive and receptive language: Tracy's dementia story Tracy, a speech-language therapist, tells us about her mum's journey through the stages of dementia and the difficulties dementia causes with communication - particularly in expressive and receptive language. Tracy, a speech-language therapist, tells us about her mum's journey through the stages of dementia and the difficulties dementia causes with communication - particularly in expressive and receptive language. ... 28 July 2020
Real stories Another Cup of Tea: A son's diary about caring for his mother with dementia Martin Dewhurst’s book, 'Another Cup of Tea’, is a journal through his experiences of being a full-time carer for his mum with dementia. Martin hopes his journey of highs and lows will help others find their way to cope with the role. Martin Dewhurst’s book, 'Another Cup of Tea’, is a journal through his experiences of being a full-time carer for his mum with dementia. Martin hopes his journey of highs and lows will help others find their way to cope with the role. ... 24 July 2020 4comments.
Real stories Woodworking to keep the mind active: Liz and Carl's dementia story Liz and her husband, Carl who has vascular dementia, have been in the crafting business since the late 1970s. Since Carl's early retirement at 48 years old, they now spend time together making wooden animals for their friends’ gardens. Liz and her husband, Carl who has vascular dementia, have been in the crafting business since the late 1970s. Since Carl's early retirement at 48 years old, they now spend time together making wooden animals for their friends’ gardens. ... 08 July 2020 0comments.
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