Getting a diagnosis of frontotemporal dementia

Frontotemporal dementia (FTD) can be hard to diagnose, because it is an uncommon type of dementia and does not cause memory problems at first. However, there are some ways to diagnose FTD including scans and genetic testing.

Frontotemporal dementia
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Why is FTD hard to diagnose?

Frontotemporal dementia is much less common than other types of dementia and often has different early symptoms. This means FTD can be hard for doctors to diagnose as they may not recognise its symptoms as dementia.

Most changes in behaviour or personality caused by FTD may not be very obvious at first. These kinds of symptoms – for example, risk-taking, loss of social or sexual inhibitions, or obsessive behaviour – can sometimes look more like the person is going through a difficult or emotionally-challenging time.

Also, if the person is under 65, doctors may not expect to see dementia in someone so young.

Even if changes in behaviour are understood as medical symptoms, they may be mistaken for depression, schizophrenia or obsessive-compulsive disorder. Problems with language or movement may also be misdiagnosed.

If a person is showing some of the symptoms mentioned in this factsheet, they may want to ask their doctor to explore FTD as a possible diagnosis – especially if they have family members with the condition.

How is FTD diagnosed?

Getting assessed for dementia

If you or someone close to you is having memory or language problems, or feeling confused, it’s a good idea to visit your GP for an assessment. Find out more about this process.

Assessment for dementia