Real stories Complicated relationships with a person you care for with dementia Caring for a person with dementia is difficult, especially if your relationship with the person is complex. Here, Edna shares her own personal feelings about what it's like to be a caregiver for her children's father, who has dementia. Caring for a person with dementia is difficult, especially if your relationship with the person is complex. Here, Edna shares her own personal feelings about what it's like to be a caregiver for her children's father, who has dementia. ... 23 September 2019 2comments.
Real stories Laury’s story: ‘Mum became utterly lost in the fog of her own mind’ Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it. Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it. ... 20 September 2019 79comments.
Real stories Breaking the cultural taboo of dementia among Pakistani communities Khalid is from a British Pakistani family in Leeds that helped to care for his grandfather, who had Alzheimer’s disease. Now, Khalid is raising awareness about the condition and tackling the cultural stigma of dementia. Khalid is from a British Pakistani family in Leeds that helped to care for his grandfather, who had Alzheimer’s disease. Now, Khalid is raising awareness about the condition and tackling the cultural stigma of dementia. ... 18 September 2019 2comments.
Real stories Debbie's story: 'Not enough people are aware of early onset dementia, never mind understand it' At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed. At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed. ... 16 September 2019 71comments.
Advice What to say when someone makes an unkind joke about dementia Not all jokes about dementia are funny, or welcome. We want to make sure hurtful comments about dementia become a thing of the past. Here we suggest 5 ways to help fight the stigma associated with dementia. Not all jokes about dementia are funny, or welcome. We want to make sure hurtful comments about dementia become a thing of the past. Here we suggest 5 ways to help fight the stigma associated with dementia. ... 10 September 2019 45comments.
Real stories 'The memory thief became a regular visitor, taking pieces of my grandma.' 12 year old A'yaan won first prize in his school's public speaking competition. He wrote this emotional piece about his grandmother, who has Alzheimer's disease. We have published A'yaan's piece here completely unedited. 12 year old A'yaan won first prize in his school's public speaking competition. He wrote this emotional piece about his grandmother, who has Alzheimer's disease. We have published A'yaan's piece here completely unedited. ... 05 September 2019 30comments.
Real stories How music therapy sessions are supporting people with dementia in care homes Music therapy can help to manage and reduce agitation, isolation, depression and anxiety in people with dementia. Learn more about how music therapy can support a better quality of life for people living with the condition. Music therapy can help to manage and reduce agitation, isolation, depression and anxiety in people with dementia. Learn more about how music therapy can support a better quality of life for people living with the condition. ... 03 September 2019 0comments.
Real stories Alice’s story: ‘Grandad greeted me as the lady that came to clean for him’ Visiting someone with dementia in a care home can be a daunting experience. For Alice, it was important to go and see her grandad, Ronald, despite knowing how hard it would be for her. Visiting someone with dementia in a care home can be a daunting experience. For Alice, it was important to go and see her grandad, Ronald, despite knowing how hard it would be for her. ... 27 August 2019 4comments.
Information How can a robot support people affected by dementia? A local authority in East England employs a humanoid dementia-friendly robot that brings joy to people with dementia through reminiscence activities. A local authority in East England employs a humanoid dementia-friendly robot that brings joy to people with dementia through reminiscence activities. ... 23 August 2019 0comments.
Real stories Raising awareness of incontinence and dementia Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with young-onset Alzheimer’s disease aged 49. Read her story, and learn why she feels the taboos around toilets must be broken. Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with young-onset Alzheimer’s disease aged 49. Read her story, and learn why she feels the taboos around toilets must be broken. ... 22 August 2019 41comments.
Information 9 people with dementia to follow on Twitter Social media is a great way to stay connected with friends, and make new ones. Here's a list of nine people to follow on Twitter that live well with dementia. Social media is a great way to stay connected with friends, and make new ones. Here's a list of nine people to follow on Twitter that live well with dementia. ... 16 August 2019 0comments.
Research Two carers volunteering to help with dementia research We are celebrating over 20 years of our Research Network. Our volunteers – who all have a personal experience of dementia – have helped us to decide which research we fund and partnered with researchers across the UK. We are celebrating over 20 years of our Research Network. Our volunteers – who all have a personal experience of dementia – have helped us to decide which research we fund and partnered with researchers across the UK. ... 15 August 2019 2comments.
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