Local dementia statistics

Understanding the scale of dementia within an area is paramount for providing high quality local services that serve the whole community.

There are currently 900,000 people living with dementia in the UK and this is projected to rise to 1.6 million by 2040. The scale and the need to prevent, diagnose, support, live and die well with dementia will only become greater.

What is a dementia pathway?

A dementia pathway is a way of describing the journey a person is on from when they start experiencing symptoms of dementia. We describe the key points of this journey as: 

• Diagnosing Well – the experience before and directly after receiving a dementia diagnosis.
• Supporting Well – how the person with a diagnosis and their friends/family are supported.
• Living Well – the support provided by local health and social care organisations. 
• Dying Well – the support provided towards the end of life.

These key areas are reflected in the way the local data has been divided on the map above. 

Why are ICSs important?

Integrated Care Systems (ICS) have a key role to play in ensuring that high quality care and support is provided to all people affected by dementia.

Since July 2022, there are 42 ICS across England. Their aim is to bring together health and social care organisations to make joint decisions on how best to allocate resources, and how those resources will support people affected by dementia.

Contact

For more information about dementia and your integrated care systems, please contact the Local Systems Influencing team by emailing [email protected]

Further information and resources

• From diagnosis to end of life: The lived experiences of dementia care and support
• Increasing access to a dementia diagnosis
• Left to Cope Alone: The unmet support needs after a dementia diagnosis
• ‘The Fog of Support’: in-depth look at caring and dementia
• A future for personalised care