Campaign reports and briefings

Alzheimer's Society produces reports as part of our work as a campaigning organisation, and briefings for Members of Parliament.

Our reports

Read our published reports and see our recommendations to improve the lives of people affected by dementia.

Improving access to a timely and accurate diagnosis of dementia in England, Wales and Northern Ireland

Alzheimer’s Society’s latest report examines the barriers to getting a timely and accurate diagnosis identified by people living with dementia, researchers and clinicians and builds a consensus on recommendations to overcome them.

The cover of Alzheimer's Society's Left to Cope Alone report

Moving forward stronger – Addressing deterioration in people with long-term conditions during the pandemic

Bringing together the views of 10 charities and allied health professional organisations, this paper shines a light on the deterioration experienced by many people with long-term conditions during the pandemic.

A Future for Personalised Care

This discussion paper starts a conversation on what social care reform needs to deliver in order to meet the needs of people with dementia.

The cover of Alzheimer's Society's From diagnosis to end of life report

From diagnosis to end of life: The lived experiences of dementia care and support

This report explores a range of issues impacting people living with dementia from diagnosis to end of life.

Worst hit: dementia during coronavirus

This report shows evidence on the disproportionate impact of COVID-19 on people affected by dementia: from the high death rate of people with dementia, to the significant cognitive decline for those who live in the community and care homes, to the rising mental health challenges for unpaid carers.

The cover of Alzheimer's Society's The fog of support report

The fog of support: an inquiry into the provision of respite care and carers assessments for people affected by dementia

This report seeks to shine a light on the support that is available for unpaid, informal carers, and the difficulties they face when trying to access respite care (or short breaks) as well as their experiences of carers assessments.

Front page of Alzheimer's Society's Personal experiences of the dementia journey report

Women's unpaid dementia care and the impact on employment

This report, produced by Alzheimer’s Society’s International Team, explores the disproportionate impact unpaid dementia care is having on women’s ability to continue paid work.

Projections of older people with dementia and costs of dementia care in the United Kingdom, 2019–2040

A report commissioned by Alzheimer’s Society from the Care Policy and Evaluation Centre (CPEC) at the London School of Economics and Political Science (LSE) sets out new estimates for the number of people with dementia and the cost of dementia care in the UK, in 2019, with projections to 2040.

All-Party Parliamentary Group on Dementia Reports

The All-Party Parliamentary Group (APPG) on Dementia, a group of Members of Parliament and Members of the House of Lords from across the political spectrum, supported by Alzheimer’s Society, regularly produces reports on aspects of dementia experience, care, and research. Check them out here:

Parliamentary briefings

2023

May

23 May - Parliamentary Debate - Northern Ireland Budget

2022

November

24 November - Backbench Business Debate - Value of Social Care

September

8 September - Lords Oral Question - Horizon Europe and Dementia Research

May

17 May - Queen's Speech - Lords Debate on Education, Welfare, Health and Public Services

16 May - Queen's Speech - Commons Debate on making Britain the best place to grow up and grow old

April

25 April - Health and Care Bill - Commons Consideration of further Lords Amendments - Cap on Care Costs

March

30 March - Health and Care Bill - Commons Consideration of Lords Amendments - Cap on Care Costs

28 March - Adjournment Debate on ‘lateral flow tests in health care settings

10 March - Lords Oral Questions Session - Care Home Evictions following Complaints

10 March - General Debate - Deterioration for people with long-term conditions during the pandemic: joint briefing with twenty other charities and specific briefing on dementia

7 March - Health and Care Bill Lords Report Stage - Cap on Care Costs/Clause 155

1 March - Health and Care Bill Lords Report Stage - Dementia Amendment

February

10 February - General Debate - Dementia research in the UK

2 February - Oral Statement - Levelling Up White Paper Briefing

January

26 January - Health and Care Bill Lords Committee Stage Briefing - Cap on Care Costs

6 January - Lords Oral Question - Hospital beds and social care